Last week I dedicated most of my personal blog posts to Invisible Illness Awareness Week. I shared our experience with our daughter, a 12 year old who has been diagnosed with congenital hypothyroidism, Hashimoto’s, and Albrights Hereditary Osteodystrophy. I also wrote a guest post for Patient Worthy describing what is typical for our daughter is her normal, but she’s starting to see that not all her friends carry the same routines.
Also during the week I attended the introductory meeting of a special needs support group our school started offering. Whether it was adoptive issues, ADD, having an IEP (that is our case,) or being on the autism spectrum, the group was a safe place to share.
As the week wrapped up, I thought about everything I’d shared and it was kind of a punch in the gut.
Here are things that I realized: